AFTER THE SURGERY Contributed by nadineparks

This is an update from Nadine.
I had my exploratory laproscopy on Thursday, Aug. 7.
Please do more than just read the results here with interest. I really need input and information from as many people as possible. Quite frankly, I am very confused now.

Despite negative results from a pelvic and abominal CT scan, two ultrasounds and a tagged white blood cell count, I am told that my gyn during laproscopy found 4 cysts on an extremely inflammed left ovary. I was “ate up” with adhesions (hard scar tissue) around my left tube from a tubal ligation I had 17 years ago. Basically, the entire left side of my reproductive system was removed.
There was a hole in my intestinal sac, possibly caused by the scar tissue, and my intestines were pushing through the sac near my belly button. The gastroenterologist that attended the surgery pushed the intestines back in the sac and inserted mesh on both the inside and outside of the hole to strengthen that area. I have a four-inch cut across my belly.
It’s the morning of day two post surgery, it’s the week before the onset of my period and I am in just miserable pain.
After the surgery, the gyn said there was no endometriosis. But the next day, he said he found one spot near my left ovary that may have been endometriosis, but he wasn’t certain. It may have been a speck of blood, he said. Most women who have endometriosis have several lesions, he said, and since there was only that one spot, he suspects it was not endometriosis.
He could not take the spot, because it was on a major blood vessel and if he had nicked the vessel I would have bled to death instantly, he said. He feels certain that my pain was caused by the cysts, inflamation and adhesions. If that spot was endometriosis, however, then the pain will return and we will treat it as endometriosis, he said.
This treatment, he said, would be to start me on Lupron shots and get me scheduled for a hysterectomy.
Supposedly, the vcr was not working, so I don’t have a tape of the procedure. The still camera was malfunctioning, supposedly, as well. I was quickly shown a before and after picture of the “swollen” ovary that did not appear swollen to me. Interestingly enough, they have no photo of the FOUR cysts, the SEVERE adhesions or the possible endometriosis spot.
Please, I need some feedback. My e-mail is nadineparks@webtv.net.
Sincerely,
Nadine

Song by T Contributed by Cazza

With one light on in one room,

i can feel the cramps when i get home,

with one small step upon the stair,

I know this pain, i can feel it there

If ENDO were a king up there on it’s throne,

would it be wise enough to leave me alone,

for this queen it thinks it owns,

wants to be painfree again,

wants to see the world alone again,

to make plans in life again, so let me go.

The unread book and painfull look,

the heat pads on, i’m lying down,

one deep breath, then it begins.

Oh look at the pain i’m in.

If ENDO were a king up there on it’s throne,

would it be wise enough to leave me alone,

for this queen it thinks it owns,

wants to be painfree again,

wants to see the world alone again,

to make plans in life again,

so let me go, leave me alone.

For the pain you cause inside my tum, feels so awful now,

and i dont know how to cope with it but i’ll try anyhow,

and all the time i’m thinking, thinking,

I want to be painfree again,

want to see the world alone again,

to make plans in life again,

so leave me alone……

Another gr8 song by Cheryl F

I’ve known a few gyni’s who thought they were pretty smart……

But U got fobbing me off down to an art……

You think your a genius, You drive me up the wall….

You’re a regular, original, ENDO know it all…..

Oh Whoa…..U think your special…..

Oh whoa…..U think your something else……

OK….so you’re a GYNAECOLOGIST….

That dont impress me much…ba ba ba ba..

So U got the brains but have U got a surgeons touch….

Now now, dont get me wrong…yeah I think you’re alright….. But that wont stop the pain in the middle of the night…….That dont impress me much…

Uh huh yeah……

Well I went to my gyni……

He said hmm ENDO I suppose…..

So I had a 2nd opinion…… Just in case….

Now all that extra information I’ve got….oughta shock him………cos heaven forbid if he should misdiagnose…….

Oh whoa U think your special

Oh whoa U think your something else……..

OK..so you’re a GYNAECOLGIST…..

That dont impress me much ……..ba ba ba ba

So you’ve had a look

And you aint saying much……now now

Dont get me wrong ….yeah I think your alright….

But that wont stop my PAIN in the middle of the night

Uh huh yeah…..YOU DONT IMPRESS ME MUCH……

Hope this cheers some of U up….

Take care

Cheryl F xxxxx

Copyright (c) words by Cheryl Ferey. Guidone. All Rights Reserved

Song by Jojo

Endo pain is driving me crazy

And I haven’t had any sex lately

But Y’know I’ve had endo on my mind

When it hurts I am filled with emotion

And my hubby is showing his devotion

Cos a pain like this is hard to describe

I know I been walking around in a daze……….endo endo

But these pills leave me in a haze………..Whoo hoo

Wherever U go

Endos with U

Whatever U do

Endos with U

The cures not simple

Endo lives in U

The cures not simple………Endos in you

It’ll always Be there in U honey

You know it’ll never go away……..hey hey

Its always inside of you baby……

So just live day by day…..whoo hoo

Wherever U go

Endos with U

Whatever U do

Endos with U

The cures not simple…………hey hey

Endo lives in U

The cures not simple………Endos in U

Copyright (c) words by Jo Woolard. All Rights Reserved

Song By Abbi

This is based on How Soon Is Now by the Smiths. See what you think.

I am the daughter and the heir of an illness that is criminally painful

I am the daughter and heir of nothing that is curable.

You shut your mouth

How can you say

That there’s nothing wrong with me today?

I am human and I need to be helped

Just like everybody else does

I am the daughter and the heir of an illness that is criminally painful

I am the daughter and heir of nothing that is curable

You shut your mouth

How can you say there’s nothing more to be done today?

I am human and I need to have hope

Just like everybody else does

There’s a club if you’d like to go

You could meet somebody who understands you

So you go and you stand on your own

And they welcome you in

And though you cry, when you go

You don’t want to die

And your doctors say it’s gonna happen now

But when exactly do you mean?

See I’ve already waited too long

And all my hope is gone

Copyright (c) words by Abigail Rowthorn. All Rights Reserved

Song By Cheryl F

This one took me ages…….. Gloria Gaynor

First I was afraid I was petrified,

Kept thinking I could never live with Endo deep inside,

But then I spent so many nights,just feeling sorry for myself,

So I logged on……..

And I’ve learnt how to carry on…..

Go on now go……get out my tum….

Even lately I’ve been getting pains deep inside my bum…

So then I had a laser lap…..

Yes they zapped it all away…..

Then they told me theres no cure…..

It will B back another day……

Go on now go…….

Oh no its back…..

Its back real bad…..

It just creeped up on me when I thought that everything was FAB…..

This thing is getting me so down

So I think I’ll have to go……

To the chatroom fer a gas

With the girls who are 1st class….

Oh go on now go….

Re-write on songs as requested – By cazza

Pain Is Burning !!!!!!!!! Pills r wearing thin !!!

According to all gynaes a hysts the way to go !!

hey but what do they know !!!

Temperature is rising !!!!!!! Feeling really low !!!!

Endo Pain is Torture !!!! Just wish it would go !!

But tonite for the 1st time
just about half past ten, If I’m really lucky I’ll try sex again.

Its Raining Wee !!!!!!!Bloody Hell Its raining wee

Abosolutely Soaking WET !!!!!

Urgh I need to change my Kecks !!!!!

Another Song by Cheryl F

Endo pain is driving me crazy

And I haven’t had any sex lately

But Y’know I’ve had endo on my mind

When it hurts I am filled with emotion

And my hubby is showing his devotion

Cos a pain like this is hard to describe

I know I been walking around in a daze……….endo endo

But these pills leave me in a haze………..Whoo hoo

Wherever U go

Endos with U

Whatever U do

Endos with U

The cures not simple

Endo lives in U

The cures not simple………Endos in you

It’ll always Be there in U honey

You know it’ll never go away……..hey hey

Its always inside of you baby……

So just live day by day…..whoo hoo

Wherever U go

Endos with U

Whatever U do

Endos with U

The cures not simple…………hey hey

Endo lives in U

The cures not simple………Endos in U

Copyright (c) words by Cheryl Ferey. All Rights Reserved

Ode to Cheryl and Abbi – by Cazza

Her name was Cheryl, she was a song Girl,

With a re-write here and there and a jingle from her to share

She would entertain us

and while she made us laugh

and laugh til our sides hurt

she would be there, ready to provide us more

It encouraged others to do the same,

Wot more can I say

At the Endo ! Endo chatroom !

The funniest songs to ease our pain

At the Endo they fell about laughing !!!!

Laughter and Pain are always a Fashion

At the Endo ……..They laughed some more !!!!

Her name was Abbi

She had a stabby (sorry v lame)

her song was well written too, it was very meaningful

and when Abbi wrote it down, she began to frown.

Because it makes her sad

But we should all be glad

As it really helps us, all get thro another day

to cope with this endo pain

Making us feel like we’re goin Insanse !!

At the Endo ! Endo chatroom !

The funniest songs to ease our pain

At the Endo they fell about laughing !!!!

Laughter and Pain are always a Fashion

At the Endo ……..They laughed some more !!!!

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