My name is Jaymie i am 22 and have suffered with endo for a very long time now. My periods were always painful, painful to the point that i would crawl up in a small ball on my bed and cry for hours.
WHen i was 19 the pain grew so bad that i found myself in the ER every second night. In order to deal witht he pain i was given morphine, and perceset, and the number of tests i had was unbelievable. I had CT scans, Hyda scans, ultrasounds, blood work, ect. At one point for 2 years the doctors told me that the pain was all in my head, and sent me to a psychiatrist to deal with the issues in my head. I was put on antidepressants, and was told that i did not deserve anyones help, because all i wanted was the drugs which they chose to stop giving me because they thought i was a perscription drug user.
For those 2 years i suffered with debilitating pain, i had to leave work and suffer all alone. I truely was alone, no one knew what i was going through, they could not see my pain, infact i became a master at hiding my pain. It took a long time to find someone who would even take the time to speak to me without turning me away, until i found an STD specialist who did an internal ultrasound and found something abnormal, the next day i received a phone call saying that i was to go into surgery for a lap to find out what was wrong.
The day finally came, and when i returned to the gyno’s office and i heard the words ENDOMETRIOSIS pour from her lips my biggest fears came true. That was 1 year ago, and to this day i still find myself hiding my pain, there are the few in my life who say they can see right through me, however they will never be able to understand. That is why i have come here. Where i live, there is no endo facility, knowledge, or support groups where i can find someone who understands. I come seeking one person who can look into my eyes and say, “dont worry, i know, and you are not alone.” Even though you cannot see the disease by looking at me, it is there and it is real